I think all these busy days full of medical appointment are starting to catch up with me.
But first, today’s vid.
Nothing in there that people haven’t heard from me before.
Still felt good to get it expressed, though.
Anyhow, today I had Wound Care in the morning. I told the nurse about the pain in my feet I’ve been experiencing lately. But like me, she couldn’t find anything on my feet to explain it, so we’re guessing the problem is my orthopedic shoes.
Which means another trip back to that sports medicine center in Vancouver to chat with my orthotics lady to see what is up.
Then in the afternoon it was back to West Coast Retina Consultants for the injection in my right eye to go with the one in my left eye from last week.
And yup. It hurt like a motherfucker. As usual.
And I realize that each injection is a little worse for me because I am losing my ability to not think about the very painful thing about to happen so I can’t keep myself from dreading it any more.
And that sucks. Bad enough that it has to happen. Dreading it does not help.
I just have to keep reminding myself that I am doing this so that I don’t go blind. And the occasional moment of agonizing pain is totally worth it for that reason.
I swore REALLY LOUDLY this time.
Good to know that I am not so cold and numb inside that I am beyond spontaneous and unwilled cries of pain.
That would be creepier than fuck.
Stil, unwilled events are quite rare in my life, so they fascinate me. It’s so weird to have a clear memory of doing something without any attached intention.
Kind of eerie, in a way.
Anyhow, so that was a thing. I ran my recent bloody eye incident past the doctor just to see what he thinks and he concurred that it was no big deal.
I figured there was no harm in getting a second opinion from an eye specialist.
I first realized the appointments were catching up with me when I went to get up to go to the eye thing and every muscles in my body whined at me that it was tired and it wanted me to lay back down for a while.
Not for long, only a couple of fortnights.
Luckily the marathon is over. I have no appointments tomorrow, it being Canada day (yay!), so I will get to just stay the fuck home.
The fact that I am this sore from a week’s worth of appointments is actually kind of depressing. I’m not going to dwell on it but it’s sad to be this feeble.
Oh well, maybe that exercise thing with the old folks will help me build up my muscles so that I am somewhat less decrepit.
Imagine if I was actually remembering to do my physio exercises as well. Why I’d be Charles Atlas within a month.
It certainly confirms that I can’t do any kind of normal job. It is online work or nothing for me. Even if I worked in a storefront business and Julian dropped me off and picked me up from right in front of it, I would not be able to do it for very long.
And damn that’s depressing.
Makes that horrible vision of me immobile in a hospital bed, full of tubes and barely alive, dance in front of my face.
Or me being like Stephen Hawking in a wheelchair only without the astrophysics.
I just can’t handle the maths.
More after the break.
On being strange
Oh right, that thing I made a video about.
Let’s set the mood, shall we?
It’s hard to truly put into words what the kind of alienation I experienced as a child does to an innocent child who didn’t ask to be a genius.
Because it’s not just the abuse and the bullying. It’s also the slow deep freeze of day after day after day of cold isolated loneliness seeping into my bones and turning my inner landscape to one as warm and welcoming as a glacier in January.
I feel like I still thawing out from all that.
And of course, I became dependent on all that cold. For “clarity”. So when people did try to reach me and make some kind of connection, I froze them out without knowing it and they went away feeling like they’d done something wrong.
They didn’t. The wrong thing was me.
So again, I wonder if anything could have gone different. It’s certainly possible to imagine my meeting some amazing adult who could have straightened me out by telling me what I was doing wrong, what I could do to make up for it, and who gave me a way to feel safe and included so that I could develop normally from that point on.
Such a person is imaginable but pretty damned unlikely. They would either needed to have had an intellect like mine, or enormous quantities of authority, warmth, force of personality, and sheer determination to be able to emotionally wrestle me to the ground and get my attention and force me to really listen.
So could things gone differently? Maybe. Could they have gone better? I don’t know.
They certainly could have gone worse. I dodged become autistic somehow. It must be because of the early childhood education I got from my babysitter Betty, who was by no means my intellectual equal but that didn’t matter because she was warm-hearted and tough and tender and wise and strong and I absolutely adored her.
She gave me a warm, safe light in the world and thus gave me a reason to stay in the world instead of wandering off into the endless corridors of my mind.
Too bad that had to go away. I really could have used her love during elementary school. I certainly wasn’t getting anything from my overworked mother.
And to be honest, if she’d found out about my being bullied, she would definitely stormed the school office and given them a piece of her mind.
She was kind. But fierce.
That’s still the kind of person I admire today.
And who knows, if I ever get my head together, maybe I can be like her one day.
I will talk to you nice people again tomorrow.